Spinocerebellar Ataxia Awareness Day (IAAD) is on September 25th of each year.

It is a coordinated effort from individuals and Spinocerebellar Ataxia (Ataxia, SCA) organizations around the world to help shed light on this rare disease. Ataxia, is a progressive, degenerative, genetic disease with multiple types, each of which could be considered a neurological condition in its own right. SCA is hereditary, progressive, degenerative, and often fatal. There is no known effective treatment or cure. SCA can affect anyone of any age. The disease is caused by either a recessive or dominant gene. In many cases people are not aware that they carry a relevant gene until they have children who begin to show signs of having the disorder.

Links:
Ataxia Awareness Day

Spinocerebellaire ataxie

Ataxie – Hersenstichting