Moebius Syndrome Awareness Day is an annual event celebrated globally each year on January 24th — the birth date of Professor Paul Julius Moebius, the doctor who first diagnosed the condition in 1888.

In 2011, Moebius Syndrome Awareness Day was started by the Many Faces of Moebius Syndrome, and has been embraced globally by other organizations that support efforts to raise awareness. The Moebius Syndrome Foundation recognizes the month of January as a time to raise awareness about this rare condition and educate the world about Moebius syndrome. We celebrate #MSAD by sharing information about Moebius syndrome, offering financial support and resources to approved events, encouraging people to wear purple, and raising awareness through various means and channels. “This is Moebius” is the 2024 Moebius Syndrome Foundation’s theme for Moebius Syndrome Awareness Day, and will be used to highlight the unique stories, challenges, and triumphs of individuals living with Moebius syndrome. We invite you to follow us on our social media and email platforms as we share these messages. Would you like to participate? Please email a photo, a brief write-up, or short video (less than 1 minute), and share your story with us. Individuals with Moebius of all ages, and their family members and supporters who make up our rare community are invited to contribute.

Links:
Moebius Syndrome Awareness Day